One skill that has been really helping me in these past few weeks has been the skill of being able to describe to myself in my head, in detail, what feels bodily wrong when things feel wrong. This is a relatively new skill for me. For the majority of my life, if I felt bad, … Read more
The sensory weight of disability. It’s the way it feels like I had barely learned how to take care of myself without self invalidation. It’s the way that all of my feel-good strategies involve making myself feel worse first, and immediately after. So what’s the point? It’s asking someone if they could hand me a … Read more
A weird component of running a page like this while my kids are 5 and 6, not grown, is that I’m still in the middle of this. It’s not theoretical and it’s not like I’m reflecting on years ago. Trying to find the balance between not oversharing about my personal life and my kids’ stories, … Read more
There have been quite a lot of times in my adult life when I’ve needed to talk to my husband about something but been unable to speak about it. Some of those times, the words have just lived inside of me. I think about them over and over, or maybe even make plans to say … Read more
My conference this week was absolutely amazing. I have a million thoughts rattling in my head and they need some time to condense into ways to explain myself, to share with you about what I learned, what I was able to share, what all this week meant to me. I’m going to share this, though … Read more
I’ve written before on here about my own strategy of enjoying yelling along to music, as a means of preemptively self-regulating. Because when I’m stressed out, I have a tendency to want to yell (at my kids), so I take that need, recognise it, and preemptively meet it in a non harmful way, when I’m … Read more
This is a Spanish language translation of this post, which is in English. Post traducido del original en Ingles. “Querido Autismo, Eres la razón por la que mi pequeñito se apasiona intensamente por temas específicos de una forma particular. Desde que era chiquitito ha sido así, por cómo la configuración de su cerebro ha sido … Read more
When I was a kid, I really loved marshmallow cereal (like Lucky Charms or Marshmallow Mateys, the knockoff brand that we actually usually ate). I really wanted to pick out all the oatmeal pieces and eat them first, so that I could have a big bowl of marshmallows left at the end and try eating … Read more
My son (6) wanted to listen to music. He loved the music, the way it felt in his body, so he danced. He loved the music, the way it sang in his mind, so he sang. He loved the music, the way it touched his emotions. So he found some paper and he wrote down … Read more
Sometimes when I tell parents that it’s okay to wear earplugs in order to cope with their own sensory sensitivity/avoidance, they worry that they’re going to hurt their children or implicitly be telling their children that they’re too loud, too much, etc. My children have been around me wearing earplugs since they were 2 and … Read more